Living with Steinert’s Desease

Back in 2011, after the passing of our firstborn, my wife was diagnosed with Myotonic Dystrophy, also known as Steinert’s Disease. Throughout the years she’s started to have more difficulty when doing the most mondane tasks arroud the house. Normal movements don’t come as naturally as for any one else of us, and energy levels are continuously low and very quickly depleted.

In this Series I show the world how it is for her to do the most mondane tasks.



Share this post